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charity

What did you do when your friend died of breast cancer?

On February 13 this year my friend Ainslie died of breast cancer after fighting the dreaded disease for 12 years. I knew Ainslie was going to die, at the time of her death she had cancer in her brain, was wheelchair bound and her body was less and less able to function. Given that I knew she was going to leave, I was always so sure I’d know when the time came. However I did not.

It was a full 24 hours later – while away with my family on a weekend break  – when I got the text from her husband Phil to tell me she’d gone.  I went into the state of shock which comes when someone who is part of your life is taken, a parting even worse if that someone is young, in this case just 47. My son told me he’d never heard me cry like that. 

Ainslie Duffell

Ainslie, who fought breast cancer for 12 years

I asked him what he meant. After all, I’m so soft I’ll cry at a tv advertisement which pulls on the heart strings. He’s seen me cry regularly, hundreds of times. He just said ‘it wasn’t like that’. I think he meant I was howling – making that kind of sound you make when you are almost separate from yourself wondering why on earth you are emitting such a strange, animal noise. 

When home, i visited Phil and Alex to see them following Ainslie’s passing. It’s one of those moments you dread but know you have to face and I did it with one of my children who felt she wanted to be there. It was such a shock to walk into the house and see Ainslie looking at me from the sofa – my heart flipped. Perhaps there’d been a mistake – but how could there be? It was actually Ainslie’s sister, Lindsay, who looks like her, or who looks like her before cancer took over Ainslie’s body and tried – but did not succeed  – to rob her of her essential self. 

What do you do when your friend dies from cancer? When you could do absolutely nothing to help her when she was here apart from being there? You can – donate money to her funeral fund, you can support her family in the days following her death, offer to do some practical things like cook meals, do shopping, clean the house. However, having suffered loss myself before – that’s not where the best and most positive route lies. Do those things. Do them as a matter of course, but don’t let that be it. The best route for me lies in letting everyone know this person mattered  weeks, months or years down the line. For everyone achieving that may look different. 

I lost my dad when he was 58 and I remember him daily by talking about him and ensuring my children know what he looked like, the funny things he said and did. What he did or didn’t like. How he influenced me for good and ill. When I lost my brother in law at just 49, it was about honouring his children, seeing him in them, trying to support my sister through the worst times of her life – and trying to keep on doing it even when it’s hard to do so. That’s family. But what about a close friend?

When I went to Ainslie’s house to see Phil and their son Alex, following her death. Alex and Phil told me they had a plan. In her journal, Ainslie had said how sad she was that she was unable to see Alex achieve his first century at cricket. Alex is a rising young star on the Wiltshire cricket scene and the sport is his passion – as it is Phil’s who is a sports journalist and qualified cricket coach. Why was Ainslie unable to see her son play on that day? As a wheelchair user, the cricket club where Alex plays regularly has very poor wheelchair access and nowhere for a disabled or very ill person to view a match safely or in any degree of comfort. Although very proud of her son, Ainslie’s wish to see him play could not be fulfilled. Her journal revealed the true extent of her sadness.

Now I know nothing about cricket save it can involve teams dressed in white carrying bats, using very hard red balls and the word ‘runs’ comes into it. It’s not a sport I’ve ever been interested in and my only abiding memory of it is the novelist DH Lawrence refers to the ‘chocking’ of the cricket ball hitting the bat in one of his novels. I’ve always liked the word ‘chock’. When Phil & Alex asked if I would support them in a five year project to rebuild the cricket pavilion at the Purton Cricket Club in Wiltshire so that no other wheelchair user would be denied access – I said yes. 

As I said before, I could do nothing to help Ainslie while she was alive battling this horrible, disgusting disease – but this is something I can do. I can do my little bit to support Phil & Alex as they attempt to create a legacy in Ainslie’s name at a cricket club which will be 200 years old in 2020. I’m proud to have been asked and I’m proud to do my bit. 

Could you do your bit by sharing this blog post? It will be one of many charting this journey over the next few years and highlighting events to raise money. At this early stage, just over £5,000 has been raised to get the project off the ground. It will be a long journey ahead with obstacles, hurdles and great moments. But it will never be anything like the journey which went before….so this is what I’m doing for my friend Ainslie….

Putting the DIY into PR

I’ve worked with many small businesses and charities over the years and have found that plenty would like to have a regular presence in the media or online but few have the budget to match.

PR takes time, and while a couple of articles in the press may help with instant publicity, often what is needed is a long-term strategy to develop a brand and continuous plugging away at getting customer recognition. Many small organisations lack the skills internally and can’t afford to hire someone on an on-going basis, so how can they build a media profile?

Fiona and I have been puzzling about how to tackle this issue for a while. We were talking with social media whizz, Jackie Hutchings and fellow blogger and journalist Jo Smyth, it turned out that they’d been pondering the same thoughts too.

So we’ve decided to join forces and run a course on – to put it bluntly – do it yourself PR.

We have more than enough experience between us to teach the basics on how to get started on social networks, to engage an audience, blog and write a press release. We find that many small business businesses have stories to tell but they don’t know how to communicate them effectively on or offline. There is a method in writing a decent press release, and there are strategies to deploy to give that story more chance of being used. This day will help delegates understand how the media works, what makes a good story and what doesn’t.

We are prepared for complete beginners, who find Facebook, Twitter and Google+ a complete modern mystery, and for those who use social media but would like to engage in a more effective way. By the end of the day you should be able to identify and write a good story about your news and know how to maximise the ways of communicating that message. Our aim is that delegates walk away with real, practical skills to build on what they already know.

And the final thing is, this course is aimed just at women.

We want a relaxed vibe to the day, where questions (however basic) can be asked with no judgement.

My DIY PR takes place at the Mechanics Institute in Milton Rd, Swindon on Tuesday, October 23rd.

 

Anyone interested can book here

http://mydiy-pr.eventbrite.com

 

Round-up of news – no, it’s not about phone hacking!

So the hacking saga goes on with resignations and revelations galore – with all other news disappearing out of sight.
It’s a shame that everything hinges around this, even though it is important. It just feels like it completely obliterates other news.
Be aware you won’t get away from it tomorrow – Five Live is covering it all day as is BBC TV to name a few.

 

I’m interested but, let’s get some perspective. This story appears to be so London-centric – there’s a whole nation out there with things to say.

Here in Swindon, a young girl was buried, a girl who went off the rails through drug addiction, left her family home and years later her remains were found. A man is awaiting trial charged with her murder and that of another Swindon girl, Sian O’Callaghan. I doubt the phone-hacking means much to these two devastated families.
There’s also some good news about you know – in Wiltshire RAF Lyneham is going to be give a new lease of life. The little town of Lyneham was poised for devastation as that magnificent air base was due to close.

 

It’s a place with many great memories for me – I was lucky enough to be one of many journalists who covered the return of hostages Jacky Mann and Terry Waite to this airbase. I also went up in a Hercules once which circled over Bath, opening the doors so we could take fantastic pictures of the city from the air.

 

But I bear in mind that other areas on the UK have not been granted this type of reprieve and will see bases near them close. Often the effect of such closures is so overlooked – local economies can literally die overnight.

 

We’ve raised more than £20m as a nation for the crisis in Africa – astonishing given the economic climate but it shows that many people really do care.

 
But as for charities, a curious thing happened to me today.

 

I had a call from a lady representing a national charity, Sue Ryder, reminding me that I’d given a bag of clothes to their shop in Swindon. It was true, several months ago.

 

Why did I choose that shop? I gave the answer. A couple of other questions – the woman then entered this long spiel about what the charity does and would I consider giving £15 a month?

 

I said no, I didn’t like cold-calling, I would make my own choices about what charities to support and not to ring again.

 

I even said I was a journalist and didn’t appreciate being misled with the suggestion this was some sort of survey – when in fact it was a pushy sales call.
But this woman was not daunted, she said if I was strapped for cash, I could put off a donation for a couple of months and could give just £8 a month. I repeated my previous comments.

 

I told her I had been polite but was now going to end the call – whereupon she spoke really fast giving the name of the private company she worked for which would earn about £72,000 for doing these cold calls but the charity would raise hopefully around £190,000 from this sales push.

 

 

Times are tough for charities – but that one call alone put me off this charity – it plays on people’s sympathy and pins them down.

Don’t make me feel obliged, don’t cold call me and never continue the sales pitch

We've raised millions for needy in Africa so far....

when I’ve clearly said I’m not interested.

I do give, I will give and I have given but in my own time, at my own pace, when I feel I want to and can afford to.

A new charity shop has opened in Swindon raising money for children whose families need respite care. Guess where my next charity bag will be going?

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